Local teen needs funds to help treat debilitating illness

My daughter suffers from a chronic debilitating illness. Her name is Whitney Lance and she is 16 years old. She has Hypermobile Ehlers-Danlos Syndrome. In other words, her body has faulty collagen so her tendons and ligaments do not hold her joints in their sockets. She has daily migraines and is in constant pain. She has a few other diagnoses that are Dysautonomia and POTS. Her autonomic nervous system does not work the way other peoples do. She forgets to breathe on occasion along with many other symptoms. The POTS causes her to pass out or blackout when standing. Her heart races and she has a murmur.  I am asking for help with travel to get her to Shreveport Louisiana for an appointment with a specialist for the Hypermobile Ehlers-Danlos. We were called at the last minute with the appointment. These syndromes are not very known about and a lot of doctors have turned us down. We need help with travel money to drive to Shreveport and then to Dallas and home. Any and all help would be much appreciated. The money raised will go towards hotel rooms, food and gas money.  Once a very competitive swimmer and training for the Olympics Whitney had great dreams. Having always suffered migraines, we finally were referred to a neurologist that put the pieces together. Starting with the migraines and working our way through the body pain daily. Chronic pain is a very large part of Hypermobile Ehlers-Danlos. If you don’t know what this syndrome is it is worth the research. Always tired from the constant pain, it is hard for her to live a normal life. She would love to go out with friends on the weekends without having to sleep for 3-4 days afterward. Most of the time the pain is so bad she can’t get out of bed. She has gone from being in High School Pre-AP classes and excelling in everything to being homeschooled and barely able to have the energy to do her work. It is hard to watch your child deteriorate in front of your eyes in a years time. She can not keep weight on. In the last couple of, she has lost about 10 pounds. In total since the summer that is about 30 pounds now. I can not tell you how hard it is to watch. No, I don’t want sympathy. We just need the help with money to get to the doctors that can help. The doctors that we have seen are scared to touch her because of the lack of knowledge of her illness.  Thank you for giving us the time to read this. If we do not raise the money we will not be able to go. Her appointment is on November 26, 2018.

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